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What the hell happened to my brain?: Living Beyond Dementia by [Swaffer, Kate]

What the hell happened to my brain?: Living Beyond Dementia 1st Edition, Kindle Edition

5.0 out of 5 stars 2 ratings

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Length: 394 pages Word Wise: Enabled Enhanced Typesetting: Enabled
Page Flip: Enabled Language: English

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Review

Laura Venables, who works on the Society's Engagement and Participation programme, was fascinated by Kate's account of 'prescribed disengagement'. This is how Kate describes the advice she says she was given - but ignored - to withdraw from her life and work after she was diagnosed. Laura says, 'Kate challenges the assumptions that are continuously brought out to define living with dementia. 'She openly illustrates her experiences of striving to continue life as she lived it the day before she was diagnosed, and of all the opportunities that she has become involved with since diagnosis - it's exciting stuff!'

Product Description

Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia.

Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity.

Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.


Product details

  • Format: Kindle Edition
  • File Size: 1836 KB
  • Print Length: 394 pages
  • Publisher: Jessica Kingsley Publishers; 1 edition (21 January 2016)
  • Sold by: Amazon Australia Services, Inc.
  • Language: English
  • ASIN: B017HX79Z6
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Enabled
  • Screen Reader: Supported
  • Enhanced Typesetting: Enabled
  • Average Customer Review: 5.0 out of 5 stars 2 customer reviews
  • Amazon Bestsellers Rank: #255,272 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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2 customer reviews

26 August 2019
Format: Kindle EditionVerified Purchase
19 May 2016
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Most helpful customer reviews on Amazon.com

Amazon.com: 4.2 out of 5 stars 11 reviews
GYHT
5.0 out of 5 stars Living & Thriving in spite of Dementia
14 September 2016 - Published on Amazon.com
Verified Purchase
3 people found this helpful
Doc 4 Cavity
5.0 out of 5 stars Invaluable for LBD Sufferers
16 December 2018 - Published on Amazon.com
Format: Kindle EditionVerified Purchase
GuilfordGraduate
5.0 out of 5 stars A moving narrative that captures one woman's journey into young-onset ...
4 May 2016 - Published on Amazon.com
Format: Kindle EditionVerified Purchase
hilda r. mendez
3.0 out of 5 stars Unrealistic expectations as disease progresses.
17 December 2016 - Published on Amazon.com
Format: Kindle EditionVerified Purchase
One person found this helpful
Wendy Sanchez
5.0 out of 5 stars Thank you Kate ! "Nothing about us without us"
10 March 2016 - Published on Amazon.com
Verified Purchase
2 people found this helpful